“With cancer, everything changes. You’re coming to grips with your whole life and asking questions like ‘Why me?’ and ‘What bad thing did I do to be punished like this?’ ” explains Bruno, 56.
According to the American Cancer Society, more than 600,000 women will be diagnosed with cancer this year. Many of them, like Bruno, will come from low-risk categories, meaning they don’t smoke; they eat diets high in fruits and vegetables; and they exercise regularly. Up until the morning Bruno found out she had cancer, she was biking 10 miles every other day and playing tennis at least twice a week. She also faithfully went to her gynecologist each year for a checkup and underwent regular mammograms.
“And then, boom, I was in a fight for my life. And it’s not over yet,” Bruno adds, “because there are no guarantees my cancer won’t come back. I just have to live the best I can and believe.”
Someone to lean on
Probably no words can describe the shock, confusion and feelings of loss and betrayal that come from hearing “You have cancer.” Although it’s a phrase difficult for anyone to hear, it can be particularly hard for women who, in many families, are the ones who take care of everyone else. So what happens when the main caregiver needs the care?
“You don’t think,” Michael Stern of Orange says simply. “You just do what needs to be done to keep everyone going.”
When his wife Kathleen was undergoing seven weeks of radiation therapy for breast cancer, Michael teamed up with daughter Kate, 22, and son David, 25, to take care of all the meals, laundry and other chores at home. This gave Kathleen the chance to focus on herself and her treatments, and be as much or as little a part of the daily routine as she was up to.
While Bruno was receiving chemo-therapy, her ex-husband Scott put his acting career on hold and left New York City to become her primary caregiver. He was as much a protector as he was a nursemaid, many nights keeping the television remote pointed at the screen to quickly change a program or an ad that might upset Bruno.
“I was so upset and sick, and feeling betrayed by my body, that I couldn’t see anything tragic, whether it was an accident, a person in a wheelchair, or even one of those programs on the Discovery Channel, where one animal eats another one,” Bruno remembers. “Scott became the ‘Official TV Monitor’ and did just so many other things for me, too.”
According to Joseph Cardinale, M.D., director of Radiation Oncology at the Hospital of Saint Raphael, there’s no substitute for a supportive family when it comes to battling cancer.
“The patient may be the one with cancer, but the problem is not hers alone. I always encourage the family to come in and be a part of the patient’s treatment. Support for everyone involved is essential,” he says.
However, the word “support” means different things to different people. Not everyone has a strong home support system. Some people live alone, have no living family and few friends. There are also many patients who don’t want to involve their families with the weighty issues that accompany cancer; they’re afraid their disease makes them a “burden.” Others — like Amy Chaiklin of Bloomfield — find they need time alone to think and heal and work through their emotions.
For her, the constant phone calls, gifts and visits made dealing with the several surgeries, and aggressive chemotherapy, she needed to fight ovarian cancer that much harder.
“I’m thankful for all the support I had, because I know it was out of love,” says Chaiklin, 36. “But at one point, I was surrounded by so many flowers, that I felt like I was at a funeral. What I really needed was to be left alone for a while.”
So, she was truthful. She told her friends and family that while she was at the hospital receiving five-hour chemotherapy treatments, she really did need someone there to hold her hand. But at home, she wanted to be alone.
“But I’ll tell you, without my dog, I wouldn’t be here,” Chaiklin says of her terrier-collie Sparky, 3. “He was there for me 24 hours a day, seven days a week, when I wanted to snuggle or cry.”
Learning to cope
With cancer, how a person copes is not as important as that the person does cope in some way — any way, says Cardinale, who’s board-certified in radiation oncology. Just the nature of cancer causes changes in friendships, marriages and other family interactions as the patient focuses on her own needs and treatments and, unavoidably, at least somewhat distances herself from loved ones.
Many people find the support services they need in these tough times through group meetings, where participants share stories (so often similar) of what they, too, are going through and how cancer is affecting their lives.
According to Vanna Dest, R.N., a radiation/oncology clinical nurse specialist who runs patient and caregiver groups at Saint Raphael’s, those who attend meetings don’t just talk about treatments and sickness. Many share feelings of sadness and depression, as well as fears about death.
“We talk a lot about losses,” Dest adds. “With cancer, there’s more than a loss of a healthy being. There’s loss of a normal lifestyle, of control, of sexuality and of independence.”
In fact, it’s often in support groups that patients and their caregivers learn to develop a mutually supportive relationship, as both deal with their fears and frustrations. Emotions in these meetings often fly high, but that means those all-important communication lines are open, says Andrea Silber, M.D., director of Cancer Control and Early Detection at the Father Michael J. McGivney Center for Cancer Care at the Hospital of Saint Raphael.
“I’ve seen some really amazing things happen as people fight not just for their own lives, but for their families and friends as well,” says Silber, who’s board-certified in internal medicine and medical oncology. “In some cases, these people’s lives change overnight. One day everything is great, and the next they find out they have cancer. The women I see want to keep up with their children, and their jobs, but in some cases it’s unrealistic.
“Schedules that used to include going to work, or regular workouts at the gym, are now filled with doctor’s appointments, careful meal planning and almost indescribable stress, Silber continues. “And that means a lot of changes for everyone involved — patients, their families, or whoever is helping them through. That’s why venting, and talking it out, isn’t just important, but absolutely necessary.”
The physical side
Part of what makes cancer such a complicated and traumatic disease is that the physical effects only exacerbate the emotional ones — and sometimes vice-versa.
Women who undergo surgery for breast cancer can be left with only part of a breast, or it can be removed completely. In vaginal cancer, part or all of the vagina may be removed. Radiation and chemotherapy, the two most common nonsurgical cancer treatments, produce side effects that range from severe nausea and fatigue to total hair loss and blood problems.
“It’s very difficult when the things that are commonly associated with femininity and attractiveness, like hair, breasts and youth, have been altered,” Silber says. “It can be hard for someone to get used to a new kind of beauty.”
It was after the second chemotherapy treatment that Chaiklin — horrified — started seeing clumps of hair in the shower. “Appearance wasn’t so much why I was upset about losing my hair. It was the reality of it. I was bald. I looked like a cancer patient. I was a cancer patient,” Chaiklin says.
The Looking Forward health and wellness program at Saint Raphael’s, run by volunteers, helps women deal with these kinds of self-esteem and coping issues. It offers a wig and hat boutique, resource library, numerous support groups and social services, and psychiatry, pastoral care and nutrition counseling. It also provides free Internet information services through an American Cancer Society database to help patients become better informed about cancer and treatments.
Looking Forward Coordinator Joyce Bellis says her work with the program is not just to reach out, but to give back. She is a breast cancer survivor and knows how important it is to have hope. Says Bellis: “Having cancer can be devastating. The good news is that there are many people here ready to do whatever it takes to help you get through it.”
Bruno concurs: “When I found out I had cancer, I thought I was a goner and that was that. But I want women to know that if Nancy Bruno can make it through chemotherapy, anyone can do it. I’m the biggest chicken there is.”
Accompanying story: Screenings key to early detection
A cancer screening is an essential tool for early cancer detection in all women who otherwise do not have symptoms, or may not recognize cancer-related symptoms.
The American Cancer Society recommends that women have their first cancer screening at 18 years old. Tests should include general health counseling and a thorough physical examination of the mouth, thyroid, skin, lymph nodes, breasts and ovaries. Yearly pelvic exams with a pap test are also suggested, and an initial baseline mammogram should be done between the ages of 35 and 39.
From age 40 to 49, pelvic examinations with a pap test should be done yearly and include a digital rectal examination. Mammo-grams should be performed every one to two years, or as your doctor recommends. An endometrial tissue sampling is also suggested during menopause.
Beginning at age 50, yearly cancer screenings should include a stool test for blood and a mammogram. A colon exam by endoscopy should be done every three to five years.
If family history or other factors put you at a higher risk for cancer, talk with your doctor about other screenings that should be performed.
Accompanying story: Killer cancers
Lung cancer is the No.1 cancer killing women in the United States. Although Connecticut’s estimated instances of breast and lung cancer were exactly even last year — 2,000 cases each — nationally there were three times as many deaths from lung cancer than breast, reports the American Cancer Society. That’s more than 120,000 fatalities.
“The statistics of lung cancer are staggering,” says Joseph Cardinale, M.D., director of Radiation Oncology at the Hospital of Saint Raphael. “Until young people lose the ‘that will never happen to me’ attitude, and we see a decline in smoking, these numbers aren’t likely to decrease drastically either.”
According to the American Cancer Society, the other four leading causes of death in women by cancer are:
- Breast, approximately 44,000 deaths a year
- Colon and rectum, approximately 29,000 deaths a year
- Pancreas, approximately 14,000 deaths a year
- Ovary, approximately 13,500 deaths a year
Pictured: Cancer survivor Nancy Bruno gets a squeeze from her oncologist, Andrea Silber, M.D., at the Father Michael J. McGivney Center for Cancer Care at the Hospital of Saint Raphael.

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page was last updated on 04/23/2001
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